Wow it really has been a long time since I have posted and I am sorry about that.  It's just been a rough couple of months and I never seem to have the energy.  I didn't want to leave for Hungary without reaching out to everyone since I finally got a better understanding of what's going on with my cancer treatment.

Overall the tumor's have shrunk by a 35 to 40% margin, which is awesome.  I do have new growth but that are still considering everything stable.  Appears that I had more tumors then they told me about as I never knew I had them in my lungs.  I guess they tell you as little as possible so while I'm hearing lungs for the first time last month it turns out it was there all along.  Basically this is giving me the incentive to stay on the medicine for another cycle.  I get scans again in June and we will reassess again then.  If the side effects continue to the level they have been then they will most likely pull me off the meds but if they can stay at a tolerable level I'll stay on as long as I can or until the end of the trial which may be a couple of months.  The good news is there is another drug available that actually has been approved by the FDA so the Dr's plan is to go on that one next or to get some type of compassion pass to stay on the drug I am on now.  So confusing right.

Thank you everyone for your continued love, support & prayers.  I know I don't talk to everyone as much lately, it just gets hard for me when I feel so bad.  I hope that the warm weather will help and also the visit to Hungary.  I'll post again after our trip and let you all know how things went.

Love & Hugs

Sue