Well never want to start this on a negitive note but must say the last couple of days have not gone so good....

.... I think our nurse is a little scatterbrained and I have to worry about the kind of care I am going to get.  the reality of the situation is that my life is in their hands and if this nurse doesn't even remember to call me for an appointment how do I know she will do what she is supposed to for my care??  I was supposed to have appointments the end of December and NO ONE called me, she called me on the 4th and asked why I didn't show up... HELLO DO YOU REALLY THINK I WOULD MISS AN APPPOINTMENT???  Here I had appts. on the 28th thru 31st that she never told us about, she called me on the 3rd asked why I never showed up I said what the heck are you talking about and then we proceeded from there... So I have appointments Tues, Wed & Thurs this week I wrote everything down, they were all cat cans and come Wednesday as Joey is waiting for me he ends up meeting with the nurse and she says I have 2 appts. on Thurs. I am like WHAT I only know about the bone scan so here we are at U of P on Thursday I ask them if I have an MRI scheduled in between and the lady checks and there is nothing so we call the nurse and she is all like well this was supposed to happen and this is supposed to happen  but atlas the only appointment I have that day is the bones can... so here we are home come Thursday and I get a phone call at 5pm and now we need to be at U of P tomorrow at 9am tomorrow for an MRI.... WTF... at this point do you even think I have any veins left... do you not realize how hard the last 3 days have been... do you not realize that I am not working and everyday I am here Joey isn't working either... Why couldn't all of this been scheduled together... Everyday that this crap happens is a day she is f'ing with my life. 

Sorry I try not to be negative but after a day like today and a week like this week it's hard.  I watched them have no idea how to get a vein, I heard a guy say NO it's 3:30 he is leaving at 4pm so he won't come down and help them find a vein, I sat there for hours while they couldn't find my paperwork and I watched my husband miss work over 4 days that might have been combined into 2 or 3 days so after awhile this gets a little tough... I don't want to bitch but you know what what else is this blog here for right... I am going to have days where I say WTF.... I am going to have days where I say I'm doing great, thank you GOD for letting me live another day... so unfortunately for you all today is a WTF day....

 

 

Love and Peace to All :)

Sue

 

 

 

 

 

 

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